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History and Development of Palliative Care
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References and Further Reading from India pages
 
References
1
Human Development Report 2005: International Cooperation at a Crossroads: Aid, Trade and Security in an Unequal World.  2005.  United National Development Programme.
2
Seamark D, Ajithakumari K, Burn G et al. Palliative care in India. Journal of the Royal Society of Medicine. 2000;93:292-295.
3
Kumar S, Rajagopal MR. Palliative care in Kerala. Problems at presentation in 440 patients with advanced cancer in a south Indian state. Palliative medicine. 1996;10:293-298.
4
Sebastian P, Varghese C, Sankaranarayanan R et al. Evaluation of symptomatology in planning palliative care. Palliative medicine. 1993;7:27-34.
5
Vijayaram S, Ramamani PV, Chandrashekhar NS et al. Continuing care for cancer pain relief with oral morphine solution. One-year experience in a regional cancer center. Cancer. 1990;66:1590-1595.
6
Stjernsward J, Stanley K, Tsechkovski M. Cancer pain relief: an urgent public health problem in India. Clinical Journal of Pain. 1985;1:95-97.
7
IOELC interview: FD Patel, Dr Anand and Dr Aora, 12-2-2004.
8
IOELC interview: K Rao, 5-1-2005.
9
Report on activity and history of the Arulagam Hospice. 2005. Tamil Nadu, India, Arulagam Hospice.
10
Arulagam Hospice service leaflet. 2005
11
Selman, L. Fieldnotes: Arulagam AIDS Hospice. 2005.
12
IOELC interview: C Soundavarajan, 26-1-2005.
13
IOELC interview: DD Rathod, ID Budiwala, ADD Dave, 1-4-2005.
14
IOELC interview: AD Kahn AD, 14-3-2005.
15
IOELC interview: AKD Patel, 13-5-2005.
16
IOELC interview: SM Shah, 4-4-2005.
17
Vijayaram S. India: status of cancer pain and palliative care. Journal of pain and symptom management. 1993;8:421-422.
18
Rajagopal MR. The challenges of palliative care in India. The National medical journal of India. 2001;14:65-67.
19
Ajithakumari K, Sureshkumar K, Rajagopal MR. Palliative home care--the Calicut experience. Palliative medicine. 1997;11:451-454.
20
IOELC interview: S Kumar, 14-1-2005.
21
Selman L. Field notes: Wayanad. 2005.
22
IOELC interview: TS Babu, 19-1-2005.
23
IOELC interview: A Shajan A, 2005.
24
Barbara Hind, Cansupport. Touching Lives. 2004; New Delhi: CanSupport India.
25
IOELC interview: H Gupta H, 11-11-2004.
26
Cansupport. CANSUPPORT Newsletter. 1-9-2004.
27
Report on activity and history of the Arulagam Hospice. 2005. Tamil Nadu, India, Arulagam Hospice.
28
IOELC interview: MA Muckadan, 4-4-2005.
29
Muckaden MA. Paediatric Palliative Care in India, 11th conference of the Indian Association of Palliative Care, Chandigarh, 12-14th February. 2004.
30
IOELC interview: SVM Jadhar, 4-4-2005.
31
IAPC. Indian Journal of Palliative Care. 1999;6:5-17.
32
Dey SK. Education of physician on end of life care: Indian perspective. Indian pediatrics. 2000;37:1047-1050.
33
Chandra P, Jairam KR, Jacob A. Factors related to staff stress in HIV/AIDS related palliative care. Indian Journal of Palliative Care. 2004;10:2-8.
34
Rajagopal MR, Venkateswaran. Palliative care in India: Successes and limitations. Journal of Pain & Palliative Care Pharmacotherapy. 2003;17:121-128.
35
IOELC interview: AD Sowani, 7-4-2005.
36
Goswami D. Guwahati Pain & Palliative Care Society Initiative. 12th International Conference of Indian Association of Palliative Care proceeding. 2005.
37
Patel F. Validation communication 25.01.06.
38
The Bangalore Hospice Trust. The Bangalore Hospice Trust Annual Review 2003-2004. 2004. Bangalore, Karnataka, India, Karunashraya Bangalore Hospice Trust.
39
IOELC interview: S Devi, 12-2-2004.
40
Areacode Palliative Care Association. Areacode Palliative Care Clinic Report. 2005. Malappuram, Kerala, India, APCA.
41
Zulaida D. Incidence of cancer in 400 Patients, from Aug 2002 to 31 Jan 2005 - registered in Anwar Memorial Pain & Pallaitive Clinic. 1-2-2005. Kerala, India, Anwar Memorial Pain and Palliative Care Society.
42
Pain and Palliative Care Society. Pain & Palliative Care Society, Edakkara Palliative Care Clinic Report. 20-1-2005. Pain and Palliative Care Society.
43
IOELC interview: D Wazita, 7-2-2005.
44
Nayak S. Validation communication 04.02.06.
45
Acharya Tulsi Regional Cancer Treatment & Research Institute. Acharya Tulsi Regional Cancer Treatment & Research Institute: Annual Report 2004. 2004. Bikaner, Rajasthan, India, Acharya Tulsi Regional Cancer Treatment & Research Institute.
46
IOELC interview: D Muthaiya, 25-1-2005.
47
IOELC interview: T Monanasundaram, 12-2-2005.
48
IOELC interview: S Macaden, 4-1-2005.
49
IOELC interview: R George, 26-11-2004.
50
IOELC interview: M Krishnaswamy, 24-1-2005.
51
IOELC interview: D Goswami D and K Bhagabati, 14-2-2005.
52
IOELC interview: KP Nair, 28-12-0005.
53
Kumar S. National Palliative Care Policy for India. Indian Journal of Palliative Care. 2000;6:62-63.
54
IOELC interview: A Kattakayam, 2005.
55
Stjernsward J, Clark D. Palliative medicine-a global perspective. In: Doyle D, Hanks G, Cherny N et al., eds. Oxford Textbook of Palliative Medicine.2004; Oxford: Oxford University Press.
56
IOELC interview: C Koshy, 12-11-2004.
57
Gupta H. How basic is palliative care? International journal of palliative nursing. 2004;10:600-601.
58
Kumar S. Neighbourhood Networks in Pallaitive Care, Kerala, India - A social experiment. Seminar 26-9-2005, IOELC, Lancaster University.
59
IOELC interview: M Numpeli, 12-1-2005.
60
International Narcotics Control Board. Narcotics drugs: estimated world requirements for 2005. Statistics for 2003 . New York: United Nations, 2005.
61
Rajagopal MR, Joranson DE, Gilson AM. Medical use, misuse, and diversion of opioids in India. Lancet. 2001;358:139-143.
62
Pain and Policy Studies Group. Morphine for Cancer Pain in India: Fact sheet. Pain & Policy Studies Group/WHO Collaborating Center, University of Wisconsin Comprehensive Cancer Center 2001.
63
Joranson DE, Rajagopal MR, Gilson AM. Improving access to opioid analgesics for palliative care in India. Journal of pain and symptom management. 2002;24:152-159.
64
Personal communication with Professor M Rajagopal. 22-7-2005.
65
65. Pain & Policy Studies Group/WHO Collaborating Center for Policy and Communications in Cancer Care. Improving Cancer Pain Relief in the World: Report for 2003. 2004. Madison, Winscosin, USA: Pain & Policy Studies Group/WHO Collaborating Center, University of Wisconsin Comprehensive Cancer Center.
66
Pain and Policy Studies Group. Availability of opioid analgesics for palliative care in India. 2004. Madison, Winsconsin, USA: Pain & Policy Studies Group/WHO Collaborating Center, University of Wisconsin Comprehensive Cancer Center.
67
Pain & Policy Studies Group/WHO Collaborating Center for Policy and Communications in Cancer Care. Improving Cancer Relief in the World: Report for 2004. 2005. Madison, Winsconsin, USA: Pain & Policy Studies Group/WHO Collaborating Center, University of Wisconsin Comprehensive Cancer Center.
68
IOELC interview: MTD Bhatia, 2-4-2005.
69
Selman, L. Fieldnotes: Ahmedabad visit. 1-4-2005.
70
IOELC interview: M Tiruvadanan, 25-1-2005.
71
IOELC interview: S Macaden, 15-2-2004.
72
Bhatia MT. President's Message. Indian Journal of Palliative Care. 1996;2:3-5.
73
IAPC. Indian Journal of Palliative Care. 1995;1.
74
IAPC. Resolutions adopted in the IIND international conference of the Indian Association of Palliative Care held in Ahmedabad 6.2.95 to 8.2.95. Indian Journal of Palliative Care. 1995;2:54.
75
12th International Conference of Indian Association of Palliative Care Proceeding Book. 10-2-2005.
76
Chennai Association of Palliative Care. Scientific Proceedings: XIII International Conference of Indian Association of Palliative Care 10th-13th February. 2006; Chennai, Tamil Nadu, India.
77
Rajgopal D. Keynote Speech: 'Pain and Beyond' XIII International Conference of Indian Association of Palliative Care 10th-13th February. 2006; Chennai, Tamil Nadu, India: Chennai Association of Palliative Care.
78
See: http://www.cmai.org
79
IOELC interview: JD Varghese, 11-3-2005.
80
IOELC interview: RD Lalthanmawia, 11-3-2005.
81
Marlin G. Principles & practice of palliative care. Christian Medical Journal of India. 2004;19:7-15.
82
Special issue on palliative care Christian Medical Journal of India. 2004;19.
83
CMAI. Making palliative care available to all: Interview with Dr Vijay Aruldas. Christian Medical Journal of India. 2004;19:22-23.
84
See: http://www.painandpalliativecare.org/index.htm.
85
CRI. Cancer Relief India 1990-1995. 1995. CRI.
86
Burn GL. A personal initiative to improve palliative care in India. Palliative Medicine. 1990;4:257-259.
87
IOELC interview: G Burn and H Pessant, 13-2-2005.
88
Burn G. Promoting effective palliative care in India. European Journal of Palliative Care. 1996;3:113-117.
89
IOELC interview: D Rajagopal, 24-1-2003.
90
See: http://www.helpthehospices.org.uk/international/index.asp?submenu=1
91
Reynolds LA, Tansey EM. Innovation in Pain Management: Witness Seminar Transcript. 2004. London, Wellcome Trust Centre for the History of Medicine at UCL.
92
Express News Service. WHO to adopt pain and palliative clinic as model unit. Indian Express Kerala Edition. 24-11-1995.
93
See: http://www.hospicecare.com/Organisation/Org.htm#Mission
94
Delima L. International Association of Hospice and Palliative Care support activities in India. Personal communication 04.02.06.
95
Rajagopal MR. Regional Report. International Association of Hospice and Palliative Care Newsletter February 2005. 2005;6.
96
Dr Suresh Kumar. Neighbourhood Networks in Pallaitive Care: The Kerala experience. Personal communication 26-9-2005.
97
Sutton P, Bhatia MD. Three month course schedule of practical palliative & hospice care training programme for developing countries. Indian Journal of Palliative Care. 1995;1:33-39.
98
Chaturvedi SK. The Task-Force on Education in Palliative Care: Some views of members. Indian Journal of Palliative Care. 1996;2:43-45.
99
Cipla Centre for Palliative Care in Cancer. Care Beyond Cure. Cipla 2005.
100
IOELC interview: MR Rajagopal, 1-2-2005.
101
Velayudhan Y, Ollapally M, Upadhyaya V et al. Introduction of palliative care into undergraduate medical and nursing education in India: A critical evaluation. Indian Journal of Palliative Care. 2004;10:9-14.
102
Mohanti BK, Bansal M, Gairola M et al. Palliative care education and training during residency: a survey among residents at a tertiary care hospital. The National Medical Journal of India. 2001;14:102-104.
103
Pain and Palliative Care Society and Christian Medical Association of India. Fellowship in Palliative Medicine: Prospectus and Application Form. 2004.
104
IOELC interview: M Tiruvandanan, 15-2-2004.
105
Rajagopal MR, Kumar S. A model for delivery of palliative care in India--the Calicut experiment. Journal of palliative care. 1999;15:44-49.
106
Shanti Avedna Sadan. A Light in the Darkness. Shanti Avedna Sadan 2005.
107
Vijayaram S, Bhargava K, Ramamani et al. Experience with oral morphine for cancer pain relief. Journal of pain and symptom management. 1989;4:130-134.
108
IOELC interview: S Devi, 5-1-2005.
109
Burn G. A personal initiative to improve palliative care in India: 10 years on. Palliative medicine. 2001;15:159-162.
110
IAPC. Indian Journal of Palliative Care. 1995;1.
111
Nayak S. Hon. Secretary's report: Indian Association of Palliative Care 1997-1998. Indian Journal of Palliative Care. 1998;4:49-51.
112
Twycross R. CRMF/WHO Anglo-Indian Project: Reflections on visit by Robert Twycross to India 17/1/94 - 10/2/94. 1995. IOELC Archive, Lancaster University.
113
Bollini P, Venkateswaran C, Sureshkumar K. Palliative care in Kerala, India: a model for resource-poor settings. Onkologie. 2004;27:138-142.
114
Kumar S. Learning from low income countries: what are the lessons?: Palliative care can be delivered through neighbourhood networks. BMJ (Clinical research ed. 2004;329:1184.
115
NNPC. Neighbourhood Network in Palliative Care: What, How Why?. Pamphlet. 2005. Calicut, Kerala, India, Institute of Palliative Medicine, Medical College.
116
Gupta H. A Journey from cancer to 'CanSupport'. Indian Journal of Palliative Care. 2004;10:32-38.
117
WHO. The World Health Report 2005.
See: http://www.who.int/countries/ind/en/
118
See: http://www.cia.gov/cia/publications/factbook/geos/in.html.
119
Bansal M, Patel FD, Mohanti BK et al. Setting up a palliative care clinic within a radiotherapy department: a model for developing countries. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer. 2003;11:343-347.
120
De Souza LJ, Lobo ZM. Symptom control problems in an Indian hospice. Annals of the Academy of Medicine, Singapore. 1994;23:287-291.
121
International Agency for Research on Cancer. Cancer Mondial. 2006.
See: http://www-dep.iarc.fr/
122
UN epidemiological factsheets on HIV/AIDS and sexually transmitted infections: India: 2004 Update.
See:
http://www.who.int/GlobalAtlas/PDFFactory/HIV/EFS_PDFs/EFS2004_IN.pdf
Further Reading

Barbara Hind, Cansupport (2004) Touching Lives. CanSupport India: New Delhi

Graham F, Clark D (2005) Addressing the basics of palliative care. International Journal of Palliative Nursing 11(1): 2-5

Graham F, Clark D (2005) Definition and evaluation: developing the debate on community participation in palliative care. Indian Journal of Palliative Care 11: 2-5

Gupta H (2005) Community participation in palliative care: A comment. Indian Journal of Palliative Care 11: 19-21

Gupta, H. (2004) How basic is palliative care? Indian Journal of Palliative Nursing Vol. 10 (12): 600-601

Joranson DE, Rajagopal MR, Gilson AM (2002) Improving access to opioid analgesics for palliative care in India. Journal of pain and symptom management 24: 152-159

Kumar S (2000) National Palliative Care Policy for India. Indian Journal of Palliative Care 6: 62-63

Kumar S (2005) Community programmes in palliative care: what have we learned? Indian Journal of Palliative Care 11: 55-57

Paleri A, Numpeli M (2005) The evolution of palliative care programmes in northern Kerala. Indian Journal of Palliative Care 11: 11-15

Pandey M (2004) Quality of life of patients with cancer in India: challenges and hurdles in putting theory into practice. Psycho-oncology 13: 429-433

Rajagopal MR (2001) The challenges of palliative care in India. The National medical journal of India 14: 65-67

Rajagopal MR, Joranson DE, Gilson AM (2001) Medical use, misuse, and diversion of opioids in India. Lancet 358: 139-143

Rajagopal MR, Venkateswaran C (2003) Palliative care in India: Successes and limitations. In Pain and Palliative Care in the Developing World and Marginalized Populations: A Global Challenge, Rajagopal MR, Mazza D, Lipman AG (eds) pp 121-128. The Haworth Medical Press: Binghamton

Stjernsward J (2005) Community participation in palliative care. Indian Journal of Palliative Care 11: 22-27

Stjernsward J, Clark D (2004) Palliative medicine-a global perspective. In Oxford Textbook of Palliative Medicine, Doyle D, Hanks G, Cherny N, Calman K (eds) pp 1197-1224. Oxford University Press: Oxford

Wright M, George R, Mingins R (2005) Exploring the meaning of spiritual care in the Indian context: findings from a survey and interviews. ? ?: 221-226


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