Bezekela Community Home Based Care regard the development of HBC centres, the training of caregivers and the provision of kits for the sick as major successes of the service.
Dananai Home Based Care (Murambinda). Sister Onya Cunliffe considers that the success of the organisation centres on the delivery of a person-oriented service, where limited resources are directed to the patients in their homes.
Family AIDS Caring Trust (FACT). Featuring prominently among the successes of FACT is a well-motivated body of volunteers; links have also been developed with local churches, thereby allowing the organisation to reach the poor in remote areas.
Island Hospice. In the 25years that Island Hospice has been in operation, the organisation’s greatest success has been to maintain a high level of quality care in the face of growing hardships. Val Maasdorp:
‘We are very aware of not letting our standards drop and this is increasingly difficult given the high demand on the service and the decreasing numbers of experienced staff. The organisation is at the cutting edge of palliative care in the country and has created several innovative programmes, including bereaved children’s groups, memory books, and many training programmes. It has also managed the transition from low numbers to large numbers in community care, and has effectively decentralized its work. This is partly due to AIDS, economics and staffing problems’. 37
Lubancho House. Sr Nehwati considers that the success of the service has been to raise the awareness of AIDS and to mobilise communities to take responsibility for their patients. The service is now keen to de-centralise and delegate management to village level sub-stations.
Seke Rural Home Based Care measures success by the number of patients who have registered for home care - up from 112 in 2002 to 4,575 in 2004; by the appreciation shown to the organisation by the local council, the department of social welfare, the New Start Centre, Churches and traditional leaders; by the work of Seke’s Advocacy and Care committees which operate in the 21 wards; and by the successfully lobbying of the World Food Programme, which provided 5kgs of rice per patient per month for a period of three months.
In addition, Seke Rural HBC had an audience with the Parliamentary Portfolio Committee on Health during an awareness-raising field visit by committee members. Discussions centred on the unavailability of drugs, and treatment in home based care. Veronica Kanyongo writes:
‘We presented a position paper and policy analysis which highlighted the gaps in the National HIV and AIDS Policy, Community Home Based Care Policy and the Discharge Plan Guidelines. The Parliamentarians promised to use the recommendations made by Seke Rural HBC and other stakeholders to review these documents.’14
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