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International Observatory on End of Life Care


Observatory Journal Articles

Journal Articles

Below follows a complete list of articles, published in a variety of journals. Articles are listed in alphabetical order, starting with the most recent year first.


Wright M, Wood J, Lynch T, Clark D (2008) Mapping Levels of Palliative Care Development: A global view Journal of Pain and Symptom Management 35(5): 469-485

Wood J, Clark D (2008) The Historical Development of Inpatient Services Within United Kingdom and Ireland Adult Voluntary Hospices Palliative Medicine 22(): 1-2

Callaway M, Foley KM, DeLima L, Connor SR, Dix O, Lynch T, Wright M, Clark D (2007) Funding for Palliative Care Programs in Developing Countries Journal of Pain and Symptom Management 33(5): 509-513

Payne S, Hawker S, Kerr C, Seamark D, Jarrett N, Roberts H, Smith H (2007) Healthcare workers’ skills: perceived competence and experiences of end-of-life care in community hospitals Progress in Palliative Care 15(3): 118-125
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Clark D, Wright M, Hunt J, Lynch T (2007) Hospice and Palliative Care Development in Africa: A multi-method review of services and experiences Journal of Pain and Symptom Management 33(6): 698-710

O'Brien TA (2007) Overseas Nurses in the National Health Service: A Process of Deskilling Journal of Clinical Nursing 16(12): 2229-2236

Wood J, Storey L, Clark D (2007) Preferred Place of Care: An analysis of the 'first 100' patient assessments Palliative Medicine 21(5): 449-450

Fineberg IC, Grant M, Aziz NM, Payne R, Kagawa-Singer M, Dunn GP, Kinzbrunner BM, Palos G, Shinagawa SM, Krouse RS (2007) Prospective Integration of Cultural Consideration in Biomedical Research for Patients with Advanced Cancer: Recommendations from an International Conference on Malignant Bowel Obstruction in Palliative Care Journal of Pain and Symptom Management 34(1 Suppl 1): 28-39

Emerson E, Robertson J, Wood J (2007) The Association Between Area-Level Indicators of Social Deprivation and the Emotional and Behavioural Needs of Black and South Asian Children with Intellectual Disabilities in a Deprived Urban Environment Journal of Applied Research in Intellectual Disabilities (20): 420-429

Clark D, Wright M (2007) The International Observatory on End of Life Care: A global view of palliative care development Journal of Pain and Symptom Management 33(5): 542-546

Sargeant A, Payne S, Gott M, Small N, Oliviere D (2007) User involvement in palliative care: motivational factors for service users and professionals Progress in Palliative Care 15(3): 126-132
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Grinyer A (2006) Caring for a Young Adult with Cancer: The impact on mother's health Health and Social Care in the Community 14(4): 311-318

Storey L, Wood J, Clark D (2006) Developing an evaluation strategy for "Preferred Place of Care" Progress in Palliative Care 14(3): 120-123
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Hawker S, Kerr C, Payne S et al (2006) End-of-life Care in Community Hospitals: The perceptions of bereaved family members Palliative Medicine 20(5): 541-547

Winslow M, Clark D (2006) St Joseph's Hospice, Hackney: documenting a centenary history Progress in Palliative Care 14(2): 68-74
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Grinyer A (2006) Telling the Story of Illness and Death Auto/Biography 14(3): 206-222

Centeno C, Clark D, Lynch T, Rocafort J, Praill D, de Lima L, Greenwood A, Flores LA, Brasch S, Giordano A (2006) Tények és indikátorok a palliative ellátás fejlödésében a WHO Európai Régiójának ötvenkét országában (Az EAPC munkacsoportjának eredményei) Kharón Thanatológiai Szemele 3(4): 07-31

Grinyer A (2006) The Internet as an Alternative to Face to Face Methods in Sensitive Research: Access, ethics and authenticity The International Journal of Qualitative Methods (Submitted):

Astin F, Closs SJ, Hughes N (2006) The self-reported learning style preferences of female Macmillan clinical nurse specialists Nurse Education Today 26(): 475-483

Fineberg IC, Wenger NS, Brown-Saltzman K (2006) Unrestricted Opiate Administration for Pain and Suffering at the End of Life: Knowledge and Attitudes as Barriers to Care Journal of Palliative Medicine 9(4): 873-83

Hughes N (2006) User Involvement in Cancer Care Research European Journal of Palliative Care 13(6): 248-250

McDermott E, Bingley AF, Thomas C, Payne S, Seymour J, Clark D (2006) Viewing patient need through professional writings: a systematic 'ethnographic' review of palliative care professionals' experiences of caring for people with cancer at the end of life Progress in Palliative Care 14(1): 9-18
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Wood J (2005) 'How Green is My Valley?': Desktop Geographic Information Systems (GIS) as a community-based participatory mapping tool. Area 37(2): 159-170

Graham F, Clark D (2005) Addressing the basics of palliative care International Journal of Palliative Nursing 11(1): 36-39
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Byron M, Cockshott Z, Brownett H, Ramkalawan T (2005) An exploration of the words medical students associate with the term 'disability': What does disability mean for medical students? Medical Education 39(): 176-183

Kirwan JR, Hewlett S, Cockshott Z, Barrett J (2005) Clinical and psychological outcomes in a randomised controlled clinical trial of patient education in rheumatoid arthritis Musculo-Skeletal Care 3(1): 1-16

Emerson E, Robertson J, Wood J (2005) Emotional and behavioural needs of children and adolescents with intellectual disabilities in an urban conurbation. Journal of Intellectual Disability Research 49(): 16-24

Paz S, Clark D (2005) Palliative care in Colombia Progress in Palliative Care 13(2): 75-83
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Wright M (2005) Palliative Care in Europe: A view across the borders European Journal of Palliative Care (Supplement) 12(2): 33-36

Hewlett S, Cockshott Z, Byron M, Kitchen K, Tipler S, Pope D, Hehir M (2005) Patients' perceptions of fatigue in rheumatoid arthritis: Overwhelming, uncontrollable, ignored Arthritis care and Research 53(5): 697-702

Grinyer A (2005) Personal Agendas in Emotionally Demanding Research Social Research Update, University of Surrey (46):

Fineberg IC (2005) Preparing professionals for family conferences in palliative care: Evaluation results of an interdisciplinary approach Journal of Palliative Medicine 8(4): 857-66

Fineberg IC (2005) [Review of the book Caring for the dying: Critical issues at the edge of life] Journal of Gerontological Social Work 46(2): 117-120

Siggs M, Gnezdilov AV, Kljukovkin KS, Sophieva ZA, Wright M (2004) A celebration of hospice and palliative care in St Petersburg, Russia Progress in Palliative Care 12(1): 24-26
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Lloyd-Williams M, Wright M, Cobb M, Shiels C (2004) A prospective study of the roles, responsibilities and stresses of chaplains working in a hospice Palliative Medicine 18(7): 638-645

Winslow M, Clark D, Seymour J, Graham F, Paz S, ten Have H, Meldrum M, Noble B (2004) Changing technologies of cancer pain relief: case studies of innovation Progress in Palliative Care 12(3): 123-133
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Wood J, Clark D and Gatrell AC (2004) Equity of access to adult inpatient hospice care within North West England. Palliative Medicine 18(6): 543-549

Wright M, George R, Mingins R (2004) Exploring the meaning of spiritual care in the Indian context: findings from a survey and interviews Progress in Palliative Care 12(5): 221-226
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Wright M (2004) Hospice Care and Models of Spirituality European Journal of Palliative Care 11(2): 75-78

Wright M, Clark D (2004) Hospice care in Russia Progress in Palliative Care 12(1): 27-29
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Fineberg IC, Wenger NS, Forrow L (2004) Interdisciplinary education: Evaluation of palliative care training for pre-professionals Academic Medicine 79(8): 769-76

Emerson E, Robertson J, Wood J (2004) Levels of psychological distress experienced by family carers of children and adolescents with intellectual disabilities in an urban conurbation. Journal of Applied Research in Intellectual Disability 17(2): 77-84

Paz S, Clark D (2004) Palliative care in Argentina: barriers, opportunities and recommendations for future developments Progress in Palliative Care 12(6): 303-311
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Paz S, Clark D (2004) Palliative care in Argentina: barriers, opportunities and recommendations for future developments Progress in Palliative Care 12(6): 303-311
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Wright M, Clark J, Greenwood A et al (2004) Palliative care policy development in Central and Eastern Europe and Central Asia: An Open Society Institute initiative Progress in Palliative Care 12(2): 71-75
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Hunt J (2004) Questions for hospice in resource-poor settings Progress in Palliative Care 12(4): 179-184
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UCLA Medical Center Ethics Committee & UCLA Renal Transplant Program: Brown-Saltzman K, Diamant A, Fineberg IC, Gritsch HA, Keane M, Korenman S et al (2004) Surrogate consent for living related organ donation Journal of the American Medical Association 291(6): 728-31

Grinyer A, Thomas C (2004) The Importance of Place of Death in Young Adults with Terminal Cancer Mortality 9(2): 114-131

Grinyer A (2004) The Narrative Correspondence Method: What a follow up study can tell us about the longer-term effect on participants in emotionally demanding research Qualitative Health Research 14(10): 1326-1341

Grinyer A (2004) Young Adults with Cancer: Parents' interaction with health care professionals The European Journal of Cancer Care 13(1): 88-95

Fineberg IC (2004) [Review of the book After breast cancer - A common-sense guide to life after treatment] Psycho-Oncology 13(2): 140-1

Hughes N, Clark D (2004) ‘An experienced and thoughtful physician:’ William Munk and the care of the dying in late Victorian England’ Journal of Palliative Care 7(5): 703-710

Wright M, Clark D (2003) A New Research Initiative in Africa Progress in Palliative Care 11(4): 191-192
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Winslow M, Clark D, Seymour J et al (2003) Changing technologies of cancer pain relief: themes from the twentieth century Progress in Palliative Care 11(5): 256-260
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Dlamini B S (2003) Palliative Care in Swaziland Progress in Palliative Care 11(4): 193-194
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Wright M, Clark D (2003) The development of paediatric palliative care in Warsaw, Poland European Journal of Palliative Care 10(3): 120-123

Wright M, Clark D (2003) The development of palliative care in Poznan, Poland European Journal of Palliative Care 10(1): 26-29

Wright M, Clark D (2003) The development of palliative care in St Petersburg, Russian Federation European Journal of Palliative Care 10(2): 72-75

Clark D, Wright M (2003) The International Observatory on End of Life Care Hospice Information Bulletin 2(2):
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Clark D, Wright M, Bath P, Gatrell A (2003) The International Observatory on End of Life Care: a new research and development initiative in end of life care Progress in Palliative Care 11(2): 136-138
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Clark D, Wright M (2002) Átmenetek az élet végi gondozásban. A hospice fejlodése Kelet-Európában és Közép-Ázsiában. (Transitions in End of Life Care: Hospice and related developments in Eastern Europe and Central Asia). (Jelentés az Open Society Institute számára) Kharón VI(3): 7-22

Clark D (2002) Beacons in Eastern Europe (Comment) European Journal of Palliative Care 9(5): 180

Grinyer A (2002) The Anonymity of Research Participants: Assumptions, Ethics and Practicalities Social Research Update, University of Surrey (36):

Wright M, Clark D (2002) The Development of Palliative Care in Brasov, Romania European Journal of Palliative Care 9(5): 202-205

Wright M, Clark D (2002) The development of terminal care in Budapest, Hungary European Journal of Palliative Care 9(6): 245-248

Wright M (2002) The Essence of Spiritual Care: A phenomenological enquiry Palliative Medicine 16(): 125-132

Clark D, Seymour J, Wright M (2002) Utjecaj politickih cimbenika na razvoj palijativne skrbi u Velikoj Britaniji. (Policy factors shaping palliative care in the UK) Revija za Socijalnu Politiku, UDK 304(36): 359-70

Wright M (2001) Chaplaincy in Hospice and Hospital: Findings from a survey in England and Wales Palliative Medicine 15(): 229-242

Hewlett S, Cockshott Z, Kirwan JR, Barrett J, Stamp J, Haslock I (2001) Development and validation of a self-efficacy scale for use in British patients with rheumatoid arthritis (RASE) Rheumatology 40(): 1221-1230

Wright M (2001) Spirituality: A developing concept within palliative care? Progress in Palliative Care 9(4): 143-148

Grinyer A, Thomas C (2001) Young Adults with Cancer: The effect on parents and families The International Journal of Palliative Nursing 7(4): 162-170

Hughes N, Neal RD (2000) Adults with terminal illness: a literature review of their needs and wishes for food Journal of Advanced Nursing 32(5): 1101-1107

Turner M (1999) Involvement or over-involvement? Using grounded theory to explore the complexities of nurse-patient relationships European Journal of Oncology Nursing 3(2): 153-160

Hewlett S, Duddy J, Cockshott Z, Hehir M, Mitchell K (1999) Reasons for declining clinical research Arthritis and Rheumatism 42(9): 388

Lundgren L, Cohen I (1999) The new skills mismatch? An examination of urban employers' perceptions about public job training participants as prospective employees Journal of Social Service Research 25(1/2): 109-124

Steketee G, Frost RO, Cohen I (1998) Beliefs in obsessive-compulsive disorder Journal of Anxiety Disorders 12(6): 525-37

Cockshott Z, Hewlett S, Kirwan JR, Haslock I, Stamp J (1997) Do health professionals and patients agree on disease management strategies? Br J Rheumatol 36(1): 415

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